Screening questionnaire data consist of one record per woman per date of self-report. Screening questionnaire data are collected at several points in time. Women are allowed to opt out of having their survey data used for research on any questionnaire. This is referred to as the “no research” flag in each data set. If you are using these data, please make sure you exclude any survey data with this flag. This criterion does not apply to any other BCS data set.
BSRR Data (Breast Screening Recruitment and Reminder)
BSRR in-clinic questionnaire data (June 2001–present) are collected at the time of each screening mammogram and occasionally collected at diagnostic mammograms.
IMRS Data (Interim Mammography Reporting System)
IMRS (1996–June 2001) questionnaire data were collected at the time of each screening mammogram and occasionally collected at diagnostic mammograms.
BCSP (Breast Cancer Screening Program)
BCSP (1985–June 2001) and mailed BSRR (June 2001–present) questionnaire data are mailed to women when they turn 40 or enroll in Group Health at age 40 or older. These survey data are split into two data files:
SVYRISK Data has the first page of the survey, or the risk factor information. There is one record per survey. This file has more records than the second file (svynorsk) because risk information is reviewed and updated at each mammogram appointment. Included are fields for family history, age at menarche, first birth, and menopause, prior breast cancer, breast biopsy history, breast implants, and knowledge of breast self-exam. The field called Risksrv has the woman's risk level based on the algorithm in force at the time the survey was entered.SVYNORSK Data has the second page of the survey, or the non-risk factor information. There is one record per survey. This file contains the "non-risk" information from the survey, page 2. Fields include height, weight, estrogen use, current health status, smoking history, race, and birth control pills and estrogen use.